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October 10, 2011

Dear Friends and Family, Michael had his scans last week in Fort Worth at Cook Children's Hospital. His MIBG scan continues to show that he does not have any MIBG avid cancer at this time. His CT scans and MRIs showed that the cancer in his left eye socket has shrunk and is barely noticeable on the scans.  The cancer in his spine (T2/T3 area) has shrunk a tiny bit, but not significantly. Certainly things are moving in the right direction, but until he clears, we have to consider more aggressive therapy in the near future.  We are currently consulting with several neuroblastoma specialists about vaccine therapies, immune therapies, and various other clinical trials. He will continue to have chemotherapy every third week until we make a decision about next steps.  His next set of scans will probably be right after the holidays. Michael is in good spirits and is doing well.  He does not like missing school and other activities due to his frequent treatment.  But his teachers, coaches and friends have gone above and beyond to help him through it. Scans are always hard on Michael, but he did attempt to do this round without sedation.  Michael has been under general anesthesia more than…

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