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July 25, 2010

Hello, everyone. Michael had his latest set of scans last week, and Mike and I got preliminary results late Thursday night, and we received more details on Friday. The residual disease is still present. The tumors in Michael's skull have decreased slightly, and the tumors in the liver show virtually no shrinkage. Needless to say, this was not the news we were hoping to hear. The chemotherapy he received during his transplant was the highest dose he has received yet, so there was a chance that it could have decreased the remaining cancer more significantly. But unfortunately, that did not happen. The good news is that, unlike five years ago, we have options left. We are exploring radiation, although in Michael's case, it may not be the best solution. We are still planning to enroll him in a phase 3 clinical trial for six months beginning around the first of September where he will receive antibody infusions for five days each month, which will increase his chances of not relapsing by about 20%. And there are other options as well, which I can explain later, depending on what we decide to do. We are taking a family road trip to…

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July 01, 2010

Hello, everyone. The last few weeks have been somewhat of a fog while Mike and I have been passing each other on the tollway each day driving back and forth between Children's Hospital and our home to cover both of our children. But today we have some very good news. We were able to take Michael home yesterday after just 23 days in the hospital for his stem cell (bone marrow) transplant. The normal time spent in the hospital for this process is 30-50 days, so this is very exciting and uplifting news for our family. Michael has made a stellar recovery, and as I type this, he is on his 12th hour of sleep upstairs. The first couple of weeks were very difficult. He developed a bacterial growth that often leads to infection, and the doctors expressed concern and put him on four powerful antibiotics until the day before we left. Mike kept trying to explain to me that this was not a life threatening infection at any point, but when the doctor called and told me he had some concerning news, I'm not sure that I heard anything he said after that. Then the worst part of the…

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